Today, Katrina joins me to share her husband Angelo's story.
Angelo was given multiple ALS diagnoses. He was told he had a progressive and hopeless condition. Despite those answers, Katrina and Angelo refused to stop searching.
They pursued further testing and continued looking for explanations. Angelo was also tested for Lyme Disease multiple times and each time the results came back negative.
Still, they kept advocating for deeper answers as his symptoms progressed. Eventually, they were led to the true diagnosis of Lyme disease.
This experience is not uncommon. Many individuals diagnosed with ALS are later found to have Lyme disease or co-infections that were not detected in earlier testing.
In this episode, Katrina shares their journey through repeated ALS diagnoses, the emotional impact of those results and what it has been like navigating life after finally finding answers.
They are still in the midst of their healing journey today, and Katrina speaks about the importance of awareness, persistence and continuing to ask questions when answers do not fully align. She has also started a Facebook page "Standup4lyme" to help raise awareness about ALS misdiagnosis and to share information and support for families navigating similiar situations.
If you or someone you love is facing a difficult diagnosis this episode is a reminder to keep searching for answers.
Facebook Resources:
Katrina's group - Standup4lyme
Jessica's group - When ALS/ MS/ TM is Lyme
Looking for more answers and resources? LymeAndBeyondWithTanya.com
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